The International Paediatric Hypertrophic Cardiomyopathy Consortium
The International Paediatric Hypertrophic Cardiomyopathy Consortium (IPHCC) was established in 2016 to investigate the natural history and outcomes of childhood onset Hypertrophic Cardiomyopathy. It now includes data on over 2200 patients from 54 centres worldwide. The consortium was responsible for the development of the first risk prediction model to predict sudden death in childhood HCM (HCM Risk Kids). The IPHCC is led by Professor Juan Pablo Kaski and Dr Gabrielle Norrish, Institute of Cardiovascular Science, University College London and Great Ormond Street Hospital.
Collaborators
United Kingdom & Ireland
| Alderhey Children's Hospital, Liverpool, UK | Bernadette Khodaghalian |
| Leeds General Infirmary, Leeds, UK | Grazia Delle Donne |
| Birmingham Children's Hospital, Birmingham, UK | Vinay Bhole |
| Bristol Children's Hospital, Bristol, UK | Georgia Spentzou |
| Glasgow Children's Hospital, Glasgow, UK | Karen Mcleod |
| Glenfield Hospital, Leicester, UK | Katie Linter |
| Southampton University Hospital, Southampton, UK | Tara Bharucha |
| Cardiff University Hospital, Cardiff, UK | Orhan Uzun |
| Royal Brompton Hospital, London, UK | Piers Daubeney |
| John Radcliffe Hospital, Oxford, UK | Satish Adwani |
| Our Lady’s Children’s Hospital, Dublin, Ireland | Terry Prendiville |
| Evelina Childrens Hospital, London, UK | Sujeev Mathur |
| Newcastle University Hospital, Newcastle, UK | Zdenka Reinhardt |
Spain
| Hospital General Universitario Gregorio Marañón, Madrid, Spain | Constancio Medrano |
| Complexo Hospitalario Universitario A Coruna, INIBIC, CIBERCV, Spain | Roberto Barriales |
| University Hospital Virgen de la Arrixaca, Murcia, Spain | Fernando Castro |
| Val d’Hebron University Hospital, Barcelona, Spain | Ferran Gran |
| Hospital Universitario Puerta de Hierro Majadahonda, Madrid, Spain | Pablo Garcia |
| Sant Joan de Deu, Barcelona, Spain | Georgia Brugada |
| University Hospital La Paz, Madrid, Spain | Luis Guereta |
| Rio Hortega University Hospital, Valladolid, Spain | Fernando Centeno |
| Hospital Universitario Virgen de las Nieves, Granada, Spain | Francesca Perin |
Italy
| Bambino Gesu Hospital, Rome, Italy | Anwar Baban |
| S. Orsola-Malpighi Hospital, Bologna, Italy | Elena Biagni |
| Ospedaliero Universitaria di Parma, Parma, Italy | Bertrand Tchana |
| Careggi University Hopsital, Florence, Italy | Iacopo Olivotto |
| Monaldi Hospital, Naples, Italy | Giuseppe Limongelli |
| Heart muscle disease registry Trieste, University of Trieste, Treiste, Italy | Gianfranco Sinagra |
| Fondazione Toscana G Monasterio, Massa-Pisa, Italy | Chiara Marrone |
| Ospedale papa Giovanni XXIII, Bergamo, Italy | Francesca Raimondi |
Northern and Eastern Europe
| Onassis Cardiac surgery center, Athens, Greece | Aris Anastasakis |
| Ghent University Hospital, Ghent, Belgium | Hans De Wilde |
| Odense University Hospital, Funen, Denmark | Jens Mogensen |
| The Children’s Memorial Health Institute, Warsaw, Poland | Lidia Ziolkowski |
| Aarhus University Hospital, Aarhus, Denmark | Neils Holmark |
| University Hospital Motol, Prague, Czech Republic | Peter Kubus |
| Leiden University Medical Center, Leiden, Netherlands | Regina Bokenkamp |
| Mater Dei Hospital, Msida, Malta | Victor Grech |
| Children’s Hospital ‘Louis Turcanu’, Timisoara, Romania | Anca Popoiu |
| Necker –Enfants Malades hospital, Paris, France | Diala Khraiche |
| Pediatric research center, Department of Pediatric Cardiology, New Children’s Hospital, University of Helsinki, Helsinki, Finland | Tiina Ojala |
| Department of Pediatric Cardiology, Charite – Universitatsmedizin Berlin, Berlin, Germany | Sabine Klaassen |
| Hospital Saint Joseph, Marseille, France | Sylvie Schouvey |
| Medical University of Warsaw, Poland | Katarzyna Luczak-Wozniak |
| Universitatea de Medicina si Farmacie "Carol Davila" din Bucuresti, Bucharest, Romania | Cristina Radulescu |
| German Heart Centre, Munich, Germany | Cordula Wolf |
| Antwerp University Hospital, Antwerp, Belgium | Luc Bruyndonckx |
| Oslo University Hospital, Oslo, Norway | Marit Kristine Smedsrud |
| Heidelberg University, Heidelberg, Germany | Christoph Hofmann |
| Centro Hospitalar de São João, Porto, Portugal | Joana Miranda |
South America
| Fundación Favaloro University Hospital, Buenos Aires, Argentina | Adrian Fernandez |
| Hospital Italiano Buenos Aires, Buenos Aires, Argentina | Marianna Guerchicoff Lemcke |
| Hospital Juan A Fernandez, CABA Bueno Aires, Argentina | Maria Mercedes Saenz Tejeira |
Asia and Australasia
| The Royal Children’s Hospital, Melbourne, Australia | Robert Weintraub |
| Kochi Medical School Hospital, Kochi, India | Toru Kubo |
| Department of Pediatrics, Faculty of Medicine and Graduate school of Medicine, Hokkaido University Hospital, Sapporo, Japan | Hirokuni Yamazawa |